Welcome to Who We Are
To relieve the need of Post-Polio Syndrome (PPS) sufferers around the world by acting as a resource by directing sufferers to support groups, medical advice and by any other means that the trustees deem necessary
I have had a lot of enquiries about joining our chat room, more than I expected, so I have dedicated a specific room for us to use. Just as before, you don't need Zoom on your computer/ipad/tablet/smartphone, but I would like you to register using the link below: I have been asked to change the day to Saturday, rather than Sunday, and this I have done.
Hi there,
You are invited to a Zoom meeting.
When:: Saturday at 01:00 PM ( BST ) London for about an hour
Please register in advance for these meetings:
Register here for the Chat Room meetingI
After registering, you will receive a confirmation email containing information about joining the meeting.
See you on Saturday
Peter
.
I was 4 years old when the Polio virus caught me and over the next few years, after being totally paralyzed, spending some time in an iron lung, and intensive ( and occasionally painful physiotherapy ), I made a good recovery and began to live a fairly normal life.
And then, in 1964, aged 14, I had to have a spinal fusion to try and control my kyphoscoliosis developing as a result of weak chest muscles as a result of the Polio virus.
At that time and with the medical knowledge available all Polio survivors were told to exercise as much as possible and used the phrase 'Use it or lose it'.
Unfortunately this approach was totally incorrect and as a result many Polio Survivors are now experiencing what is being called 'Post-Polio Syndrome' with severe disabling effects. We are all now being told 'conserve to preserve', the complete opposite to the previous advice.
I hope you will find this Website fun and easy to use and helpful. If you have any comments or suggestions please don't hesitate to get in touch.
If you would like to join our Fellowship, membership and our bi-monthly newsletter is free, and you will be made very welcome, just complete our application form here
You can also join our social network to meet up with other members, chat and exchange ideas and thoughts of topics that interest you. just go to our social network and register. Any help? just contact us and we will do what we can to assist.
We also like to greet you on your birthday, so if we do not have your birthdate we may miss it. We would hate to miss your birthday, so if you could just let us have it here then this will never happen. I sincerely hope so anyway !
Help Desks around the world
We have a number of help desks just waiting for your call, or email.Just select your country or language from the drop-down box below
We shall be adding more areas of the world shortly, but in the meantime you are welcome to use the UK or US contacts. Your enquiry can be of any topic, including medical/health issues, as long as they are PPS related, and are free
( unfortunately at this stage, you will have to cover your telephone costs )
Our Newsletters
We produce a bi-monthly Newsletter which we email out to our members. If you have missed a copy and would like to read one, just make the selection below and the Newsletter will open for you to read on line or print for reading later.